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Thursday, November 10, 2011

Epilepsy Awareness Blog hop 11/11/11

Thank you for joining for our Epilepsy Awareness Blog Hop. You will see great projects and read about some of our personal experiences. There will also be blog candy along the way, so be sure to visit all the stops.
Epilepsy is a medical condition that produces different types of seizures. It affects 50 million people worldwide. If you would like to read more information about Epilepsy you can go to the Epilepsy foundation online at : http://www.epilepsyfoundation.org/







Epilepsy affects my family in a BIG way! I was diagnosed with Grand Mal seizures at 8 years old, after having a seizure riding on the back of a motorcycle going down the highway. My epilepsy is well controlled on Dilantin. I do have break-thru seizures if I miss a dose of medicine, try the generic form, or if I don't get enough sleep. Those are a few of my triggers that I try to avoid.






Dale is my oldest son. We found out he had epilepsy when he was in his late high school years. He was diagnosed incorrectly as Attention Deficit Disorder. Dale has atonic seizures and absense seizures. Dale takes Depakote to control his seizures. Generic medications have not been helpful for him.





This is my youngest son Alex. We found out in his Senior year that he has Epilepsy too. His seizures are more of a simple jerk of his shoulders and neck that look like a shiver. He is taking Depakote, and not happy with this medicine.




Don't forget to sign up for my blog candy! Leave a message below and let me know if you know somebody with Epilepsy.
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17 comments:

  1. LoraNovember 11, 2011 at 1:23 AM

    Nice layouts Sher - are they digital? I didn't realize all the different types of seizures until I started reading for this hop.

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  2. pattykNovember 11, 2011 at 9:19 AM

    Lot of great info. This hop is very helpful. My son-in-law has seizures. Very scary! thanks millierose651@aol.com

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  3. ibecircled.blogspot.comNovember 11, 2011 at 9:38 AM

    Hi Shers,
    Thanks for inviting me on this very Important hop! I am touched by all the stories and my heart goes out to all effected by this! I do not know anyone that is affected by this and have never seen anybody have a seizure. TFS!!! Love your projects!

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  4. Lynn's PlaceNovember 11, 2011 at 9:59 AM

    Awesome pages...tfs

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  5. lindaplus3November 11, 2011 at 10:37 AM

    very nice job with the lo ... i wish you all well :) lindaplusthree at yahoo dot com

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  6. AshleyNovember 11, 2011 at 11:46 AM

    These are great layouts, Sherry! :) Thanks so much for hosting this wonderful hop, a cousin of mine has epilepsy and I'm glad to be helping support the cause. Thanks for the chance to win. :)

    Ashley
    http://especiallymade.blogspot.com
    especiallymadeblog@gmail.com

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  7. paulajNovember 11, 2011 at 2:09 PM

    Thanks for sharing your stories. I learned a lot from them. Your sons must be very special to you.

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  8. Sharyn KnoxNovember 11, 2011 at 2:19 PM

    I love your layouts. I might have to do something like that to describe my seizures to the kids as they get older. My epilepsy started about my sophomore year in high school after a fall down the stairs. They were nothing severe until I was in an abusive relationship that resulted in my skull getting cracked. From then on my seizures have gotten worse. I was on meds, I decided that wasn't for me because I don't like being zombie like. I do not suggest this approach for anyone because it does have its severe drawbacks.
    Thanks for bringing light to this important subject that is often misdiagnosised.
    Sharyn
    sharynscreations@blogspot.com
    sharynknox @ gmail dot com

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  9. VickiNovember 11, 2011 at 2:25 PM

    Your layouts are great. Thanks for all the information. I do not know anyone with epilepsy (that I'm aware of). Hope your son finds a medication that works for him.

    Vicki
    vwilson577 at yahoo.com

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  10. bissecatNovember 11, 2011 at 3:47 PM

    Your layouts is lovely.I have friends ho have epilepsy.This is great hop .

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  11. Mommy's Crafty CreationsNovember 11, 2011 at 9:26 PM

    Great Lo's Thanks for sharing your story. My daughter also gets seizure and are under control with the med's.

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  12. AnonymousNovember 11, 2011 at 9:52 PM

    I have loved this blog hop! This is the 1st I have ever gone all the way thru. Thanks

    Sjesusfan@yahoo.com

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  13. Sue in CTNovember 11, 2011 at 11:18 PM

    Wow. I didn't know your boys too. Oh yes, I know a few people with Epilepsy. Like your son my friend (from school) was first told she was ADD. They put her in special education until they found out she wasn't ADD. The meds helped her but also messed with her at the same time. She always complained she didn't feel right while she was on them. This was so many years ago I don't even remember the name of what she was taking. Any ways, she is doing better now. Although there is a long way to go yet with epilepsy, it has made some progress since I was young.
    Maybe someday in their lifetime your boys can look forward to a cure. (We can hope any ways.)

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  14. MegsNovember 12, 2011 at 11:40 AM

    You are a very brave and strong person to be living with this & others in your household too! Thanks for sharing your story & thanks for the blog hop too! :) Have a great weekend!

    Meg K.
    mme622@yahoo.com

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  15. ChrisannNovember 12, 2011 at 10:50 PM

    Awesome way to get people involved. You rock!

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  16. Amy ENovember 13, 2011 at 9:59 PM

    Epilepsy hasn't affected us, but I really thank you for telling you family's story. It's great to get the awareness out there!!

    I'm having a giveaway on my blog too...stop by and check it out when you get a chance!

    amyis300 AT hotmail DOT com
    scrapthissavethat.blogspot.com

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  17. UnknownNovember 19, 2011 at 3:45 AM

    As I told you in the group, these are WONDERFUL layouts. I'm sorry I'm just now getting through to comment on your blog...I do have a question regarding the seizures Alex has...You mentioned that sometimes they are just like a jerk of his shoulders and neck...I get what I call a "tremour" like that fairly frequently. I never knew that could be a type of seizure...Is that the Myoclonic? As we discussed in the group, I need a new neurologist(I JUST got a referral to a reputable one...YEAH!) but I'm curious if that might be what my "tremours" are...

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